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Jodi is a parent, educator, former caregiver, ALS advocate, and public speaker. Jodi’s husband was diagnosed with ALS when their daughter was just two years old. Jodi is the founder of Hope Loves Company, the only nonprofit in the U.S. dedicated to providing educational and emotional support to children and young adults affected by ALS.

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Jodi O’Donnell-Ames Gives Hope to Kids Impacted by ALS​

After suffering the loss of her husband to ALS, Jodi O’Donnell-Ames turned her grief into action, creating a network of camps that provide a respite for kids with loved ones suffering from the disease.

The Long Reach of Grief

Sadness at the death of a family member has both psychological and neurologic effects. Experts explain the different ways we process loss.

Jodi O'Donnell-Ames Helps Children Who Have Parents Battling ALS

In 1995, Jodi O’Donnell-Ames’ husband Kevin O’Donnell, then 30, was diagnosed with Amyotrophic Lateral Sclerosis (ALS), a progressive neurodegenerative disease. Her first thought was how to share the news with their 2-year-old daughter Alina.

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